Text 37931, 135 rader
Skriven 2010-05-19 12:06:20 av Janis Kracht (1:261/38)
  Kommentar till text 37829 av RUTH HANSCHKA (1:123/140)
Ärende: Drowsy
==============
Hi Ruth,

> -> Eh no, you don't want aspirin for those cramps (g).. Motrin maybe
> (ibuprofen).

> Ibu is where it's at. I get the 500-tab jugs when they go on sale cheap.

Good idea.. it's the only thing I found that helps..

> -> >interactions.  Tramadol is one of those drugs you don't want to be on
> long ter
> -> > if you can help it.
> ->
> -> It sure was nasty...

> It acts like an opiate but is supposed to cause fewer problems.  Long term
> is another matter entirely.

And Mom was on it for a while.. She fell over backwards when she was taking
that drug.. it was a nasty fall.  She's still in pain from that fall too.. she
had a compression fracture that no one seems to be able to help.

> -> > -> I can take Baclofen for about a week, then it makes my legs too
> weak to
> -> > walk..
> ->
> -> > Yuck.  Not the best idea, then.
> ->
> -> Dontcha know, it's gets rid of the leg spasms by making the legs useless
> (vbg)
> ->
> That's not what I'd call a good idea.

All of the drugs for spastic muscles in the legs do that to me.  It's quite
irritating.. The first day or so is great, then the weakness sets in.  Topamax
was the worst of them though, since it took forever to get over that side
effect.. and I'm not sure that I'm over it now since my right leg is still such
a mess. Made you stupid as well (laugh).

STILL waiting to hear from my ins. company about ampyra.. the dogs.

> -> > It can't make things any worse ... except when it does.
> -> No kidding.. like right after the session.  Talk about mush legs when I
> get out
> -> of there :)  But I eventually recover, and the therapist says it's going
> well.

> I know that feeling.  If I have to get up in the middle of the night for
> some reason, mush is the word for it.

Yeah, you have to be careful with that.  A good number of my spills are at
night since I can't keep my balance in the dark.. The therapist is working on
that as well.. was a trip the first time we started working on excercises for
that one :) I can now stand with my eyes closed in one position for 30 seconds
(g)..  Don't know if it will be possible to ever have it "all" back, i.e., walk
at night completely in the dark.. but who knows.  I'll give it a shot anyway.

> -> > out for some things, especially things that strain your "core".  I'm
> always > -> > working around a load of scar tissue, surgical mesh and a
>permanent > hole.
> -> > Anything that puts pressure on that mess isn't a good idea.
> ->
> -> That's sounds particulary bad :(

> It's not the brightest thing I can do, for certain.

I can understand that one :(

>> LDN?  Let's Do Nothing?
>>
>> Lol - some may say that about LDN but it works for me so that's something.
>> It stands for Low Dose Naltrexone.  Long story, you can check it online
>>if you care to (g).  It's not "mainstream" though my neurologist at
>> NYHospital/Cornell > -> Center gives some of his patients prescriptions for
>>it.

> It's usually used for alcholism, right?  I've heard of the idea, but don't
> know anyone else who's tried it.

Actually drug addicts from what I understand.. they take it in very high doses,
like 300+ mg.  This treatment, studied by Dr. Bihari (he just died day before
yesterday :( ) is only 3.5 mg... hence the name, Low-Dose Natrexone.  It's a
minimal amount of the drug that works at night while sleep when your body
normally creates endorphins, and increases them.  There are a number of studies
being done now, I think the only one that's been completed at this point
showing effectiveness though was for Crohn's disease.. and that study was done
because of Dr. Bihari's work with LDN for MS.  He's since advised that anyone
with any immune system disorder take it.  The ldn site at lowdosenaltrexone.org
has all the info.  A lot of people who take Copaxone take it.

> -> Right, the C in CRAB (g).. Copaxone, Rebif, Avonex and Betaseron.  I
> almost
> -> started that one...

> Crab is about right, for the interferon drugs!

My doc in Manhatten wanted to start me on betaseron when it first came out. I
said no thanks.. Not enough info was around at the time to make me feel like it
would be a safe thing to do.  Then he started harping on me about Avonex..
refused that one as well.  Just didn't see the point for how it was going to
change the way I lived (or wanted to (g)).  I know how many allergies exist in
my family.

> -> > It doesn't taste like much of anything on its own.  It does chew like
> -> One of those things that picks up the flavor of other things?

> Exactly. It's one of the soy products.

I do like soy sauce and soy bean products used in chinese cooking :)

> -> > in food that would be kosher if produced in a kosher kitchen, but it's
> -> > easier on everyone concerned if nothing you bring contains meat.  TVP
>>> is the workaround in some cases.
> ->
> -> That's a good idea, and I can understand that one.  No one need be
> concerned.

> There's also at least one vegetarian in the regulars, so it means if he
> skipped dinner (it's happened) he can chow down.

> -> > Otherwise known as Louisiana Leftovers, for sure.
> ->
> -> Leftovers, indeed (g).  And that was about my thought process when I was
> -> throwing it all in the pot (g).
> ->
> My favorite way of cooking, especially when I'm alone.

Easiest sometimes as well :) Tonight we're going to probably have leftover
sauce and meatballs.

Take care,
Janis

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